As mães cuidadoras de crianças em tratamento de Leucemia Linfocítica Aguda (LLA) em uma instituição de Manaus

Abstract

The aim of this study is to analyze the conditions of life of mothers of child caregivers (a) in the treatment of ALL and the work of the social worker at the Foundation. Hemoam. Seeks to identify the determinants of the condition of life of mothers of children caregivers in ALL treatment process; point representations that these mothersin the health -disease (a) child (a) sick (a); identify the contradiction between the condition of life of mothers and carers quality of life of their children (as) bearer of ALL children; and reflect on the work of the social worker in the service provided to these caring mothers of children (a) in the treatment of ALL in the institution in question. The methodology was critical approach to qualitative and quantitative nature of a universe of 80 mothers caregivers withdrew a sample of five mothers livingin Manaus and five mothers living in the countryside. And in the case of social workers, the sample was the same: three professional social service Social Service Department of Hemoam Patient Foundation. Sampling in accordance with the criteria for inclusion and exclusion of research and consent of the participants in this study voluntarily contribute by signing the Informed Consent Form (ICF). Mothers and interview guide was used social workers form along together. The analysis of data collected after theapplication form along with caring mothers and conducting interviews with the social workers the light of knowledge on Public Health was held regarding the virtue of health care and cancer control in Brazil and on the transformation of the context of health care and its impact on the family caregiver and the caregiver health. The data reported indicate that the the condition of life of caregivers mothers reflect negatively on their practice of interfering with careful treatment of the sick child process aswell as in the quality of life of the carer parent due to the overhead imposed by their living conditions and treatment son (a) sick. As for the work of the social worker with this demand, the study identified that there is no specific work done by the social worker with the mothers of child caregivers (a) with ALL, being pointed intervention of professional, starts from the understanding of reality the patient's family as a whole, pointing right abstraction of professional theoretical knowledge in relation to specific practical condition of life of caregivers of mothers carrying children with ALL. We conclude that the problem addressed by this study is relevant and meaningful to generate theoretical knowledge to practical healthcare professionals, particularly social workers, on the condition of life of caregivers mothers of children suffering from ALL and the direct consequences of this condition of life in the treatment and / or cure the sick and compromised quality of life of the carer parent child process.