Meu corpo (in)finito e (in)completo: vivências da corporeidade na Síndrome de Turner

Abstract

This qualitative research is directed to comprehension of corporeity experiences to women whom live with Turner’s syndrome (T.S.). T. S., or gonadal digenesis, is a genetic disorder related with total, partial or rotation on second pair of female sexual chromosome (XX) in major of body’s cells. It Happens during embryonic development, excluding hereditary or parents age correlations. It has been fomenting aspects to construct this project: a few views for “being in Turner’s Syndrome”, the non-deeply of subjects questions involving most important repercussions, such as low born indices, short stature, sexual immaturity and infertility; in addition, certain, the treatment (Growth Hormone application, anabolic ingest and estrogen-progesterone replacement) and the illness itself – when assorted organics affections arise (in these cases, surgical procedures can be necessary. It’ll participate 8 women diagnosed with Turner’s syndrome, whom live in São Paulo Capital, or had been there during the research effectuation (was adopted intentionality criterion, thus there is representative quantity of participants on local choose). There interview was Northfield by these questions: 1) How has been hang out with Turner’s Syndrome? 2) How was, for you, the diagnostic moment? What did you think? What did you feel? 3) How is hang out with Other views? The analysis was based in Martins & Bicudo, Amattuzi and Giorgi considerations, treating about important elements for elaborating the main categories: hang out with Turner’s Syndrome has been…; I won’t get X What I get; I’m normal, I live a normal life! Unknown to me, so I disown and don’t take care myself; Hang out with Turner Syndrome: the no-developed-being, the women-being and the mother-being; The Other views to/from me. Through these, was constructed the comprehensive synthesis and analysis of related livingness. The work contributed for knowledge dissemination about the Syndrome, in its dissociated nosological character. The way as the health area professionals attend they was reported essential; also the image and expectative that family breeding around the Syndrome, permeated by its knowledge about. The no-clarify can increase the angst of entering in a new universe. The matching (matching herself with women whom have biologic sons, or that are in a lovely relationship, as its never can be happen with their; and, initially, consider not been capable of concrete their objectives. On the pass that knowledge themselves, bas or has not S. T leave off be substantial to turns just one of the women with Turner’s syndrome and their families life aspects. Under the interviewed women speak, they need to be attends, care themselves and go on in rights seeking. It’s hoped that others researches improve the comprehension concerning to how the parents are been per passing by being-father, or being-mother of a Diagnosed with Turner’s syndrome daughter; or deal with the professionals health area comprehension about the Phenomenon and the adopted posture