O sentido da deficiência para as mães de um grupo de crianças de um programa de estimulação essencial da cidade de Manaus

Abstract

Stimulation Program of Essential city of Manaus." The overall objective of the study was to identify the particular sense that mothers give to their disabled children, including the process of construction of such meanings and implications of the development of children. The central idea of the work came from the understanding of the senses / meanings that disability takes for the mother and the emotional charge linked to it. From these identifications sought to understand the conceptual network that revolves around the new demands of the family to deal with children with disabilities, especially the mother-infant dyad and triad same mother - infant - father while he is in the formation family. Was sought in the words of the mothers interviewed, elements that could actually help better ties with this "new" child, as the theoretical approaches and seeking the adjustment in all possible spheres, emotional, social, physical, cognitive. The research has a qualitative design and how the theoretical approach chosen by the Socio-Historical Psychology and the contributions of Vygotsky as the thoughts of the authors, the theoretical constructs and methodological attuned with the proposed objectives for the research and the functioning of the selected group. This research was conducted with five mothers of handicapped children (cerebral palsy) which makes use of Essential Stimulation Program at an institution of Special Education in the city of Manaus specializes in providing educational services and multidisciplinary and that among its activities the Group offers Stimulation Essential. The subjects who took part in the survey were chosen from the selection of a purposive sample. For data collection was chosen by the history of life, as this constitutes a retrospective account of the personal experience of an individual and refers to facts and events that were constitutive and significant experiences of the subject. For data analysis, we chose to seize the constitution of meaning through the identification of Centers for Meaning. The results showed that most respondents did not plan the pregnancy, had great pain in childbirth, there was a reception by the medical staff in labor and very little at the time of diagnosis, showing the unpreparedness of the team in deal with situations such as a difficult birth and the need to communicate the deficiency, causes, consequences and necessary guidance to mothers. As indicated by the literature on the subject is clearly realized the steps experienced by these mothers, who goes from crying and despair to acceptance and found that there actually is a pseudo acceptance of disability that child. There is no denying the love that these mothers have for their children, but this understanding refers to the disability itself, this perception has been possible through the words of denial of disability and constant duality normal / special in his speeches. It was also found that these women have taken to themselves the responsibility of taking care of the child and see it as a lifelong responsibility, forgetting that that person will grow and may have some degree of independence and this perception causes us concern because, by not allowing the independence that individual will be preventing him from developing by not offering him the necessary stimulating opportunities. We conclude with certainty that the study does not end here and that further research is needed to complement the knowledge produced here.